We’re down to three tantrums a day.
When I think about the significance of the above statement and how good it is that he only exhibits self-injurious behavior 3 times a day, I’m not sure how I feel about it. That count is only for when he’s at daycare. He still tantrums in the car/at home a couple times at least before bed. He bit his knee in the car on the way home today because his garbage truck was in “Daddy’s car.” I must say, though, they are less frequent and less severe.
I should knock on something. Seriously. Um…marble table on my left, suede couch under me, Squeaker on my right…ah!! No wood!! Let’s just hope I didn’t jinx it. Or you could knock on wood for me. Or toss salt over your shoulder. Or break a plate. Whatever wards off jinxes.
Crap. He just banged his head on the door because he couldn’t open it. Be right back…
Okay. I think he’s over it. That one only lasted maybe 15 seconds.
I was saying??
Yeah. He’s been better lately. The fact that “better” means he’s still biting himself, but less frequently? Not sure how to feel about that. You know? Sometimes I wonder when I became the parent who rejoices when her child only bites himself three times day.
I must say, though. It was kinda nice that I got to hold him and Big Guy on my lap last night. Yes! Squeaker let me hold him for more than a minute. So sweet. I had The Manager take a picture to commemmorate the moment. It doesn’t happen too often, so I must document the pure joy of the moment. I love my boys!
While we wait for the referral to the place in Jacksonville (for sensory issues) and wait for the appointment with the counseling agency (for the biting/tantrums), it’s nice that we’ve had a couple days of improved behavior. I feel relieved. And his arms might actually heal and return to normal color (unbruised). Again. Need to ward of jinxes.
I’ve been thinking about the medication issue again too. We decided at the last med check appointment to take him off the stimulant medication. As soon as we did that, the frequency and duration of his meltdowns decreased dramatically. Yes, he’s still doing it. But it’s better. So The Manager and I were talking about it last night. What if the stimulant medication stimulated him too much? The medication may have been what caused the spike in behavior. I’m trying to remember when we decided to start trying stimulant meds again, and I can’t seem to put my finger on a date, but I believe we started them just this summer. So the increase in behavior may coincide with addition of that medication. They seemed to help to start with…the first week or so. Then, I think that’s when there was a dramatic rise in meltdowns.
See, you have to be really careful to keep track of medications and what they do. I need to get better with that. I should be writing down when he starts medication and what happens when he starts them. I am never altogether sure what these medications are doing. My plan, overall, is to get him on just one medication that works really well. Either that, or help him learn to manage his own behaviors without medication. The second scenario would be ideal, honestly. I’d love to not chemically alter my child. I understand it has its time and place, and that right now, he kind of needs them. But, geez, he’s not even 5 years old yet!
You’ll find that I go back and forth a lot in my decisions. It’s like a tennis match in my head. I just smack the ball around until it lands in what seems to be the right court in the moment. Maybe that’s just a Mom thing, though. Not just a “Mother of a special needs child” thing. But a Mom Thing. We make decisions as parents and sometimes those decisions don’t turn out the best. Or we make a decision and we wonder if we made the right choice.
Agh! Squeaker has this garbage truck. The Manager bought it because Squeaker loves garbage trucks. He will actually stop and watch a garbage truck as it stops at each house, the garbage (wo)man gets out, dumps the trash in, and moves on. Bonus if they press that button that compacts the trash. So yeah. He has this obnoxious toy that makes noise. So loud. So Squeaker likes to pull it back on the floor and pick it up so that the wheels spin and it makes that awful noise. Over and over and over again. I can’t focus with all the racket going on!
The noise has ceased, finally. I know you love how I’m typing this and giving real-time updates. And you’re probably thinking, “Why is she giving real-time updates?” Because that’s how I roll. That’s why.
Anyway, I must share this conversation I had with Squeaker today when I picked him up from daycare. I’ll set the scene for you.
A white truck passes by as we’re walking to the car. There. Scene set.
Squeaker: What kind of truck is that?
Me: A pick-up truck?
Me: Well then what kind of truck is it?
Squeaker: Well…It looks like a pick-up truck, but actually it’s a Monster Truck.
Now. There are two very amazing things about this conversation. And for that reason, I’m quite willing to get over the fact that 95% of our conversations are about vehicles. First amazing thing? The last sentence is 13 words long (if you don’t count pick-up as two words). This time last year, we were struggling to get him to use sentences more than 2-3 words. 13 words? Seriously incredible! The second amazing thing? The fact that he used the word “actually” in a sentence.
Although, my pride dictates that I must point out that the white truck really was just a pick-up truck. I’m not really sure what criteria he’s got set in his head that differentiates a regular pick-up truck from a “Monster Truck.” I haven’t figured it out yet. I thought it had to do with the size of the wheels, but that particular truck had perfectly normal wheel size. And it wasn’t a large truck either. But yeah, he was totally wrong. Totally. But still very impressive.
What totally marvelous, stunning, wonderful, fascinating, spectacular, prodigious things has your child done lately? Please share!