As a parent of a child with disabilities, I know how difficult finding resources can be, so every time I find a good website, I put it all in one place. I’ve taken all of my disability resources, and put them on this page for you. I hope you find them helpful!
- IDEA http://idea.ed.gov/ The U.S. Department of Education’s website for the Individuals with Disabilities Act (IDEA) 2004 has some good information.
- Wrightslaw http://www.wrightslaw.com/ The best website for deciphering the IDEA website, above. It puts the law in terms you can understand.
- Council of Parent Attorneys and Advocates. http://www.copaa.org/ A non-profit group composed of parents and attorneys. Their website includes a search engine to find attorneys and advocates by state. Might be a good place to start if you’re at square one looking for help.
- NCDPI Parent Resources http://www.dpi.state.nc.us/ec/policy/resources/ North Carolina Department of Public Instruction (NCDPI) provides the Parent Handbook (be aware of your rights as a parent) and links to other resources, including civil rights and IDEA policy. Many other states provide the same resources, so you merely have to search for the department of public instruction in your state and locate Exceptional Children’s policy to find this same resource.
- National Dissemination Center for Children with Disabilities http://nichcy.org/ – They serve the nation as a central source of information on disabilities in infants, toddlers, children, and youth. Here, you’ll also find easy-to-read information on IDEA, the law authorizing early intervention services and special education.
- National Center for Learning Disabilities www.ncld.org – The National Center for Learning Disabilities’ (NCLD) mission is to ensure success for all individuals with learning disabilities in school, at work and in life.
- Accommodation Resources for Autism http://www.washington.edu/doit/accommodation-resources-autism-spectrum-disordersasperger-syndrome
Autism Info and Resources
- TEACCH http://teacch.com – TEACCH provides clinical services such as diagnostic evaluations, parent training and parent support groups, social play and recreation groups, individual counseling for higher-functioning clients, and supported employment. In addition, TEACCH conducts training nationally and internationally and provides consultation for teachers, residential care providers, and other professionals from a variety of disciplines. Research activities include psychological, educational, and biomedical studies. Most clinical services from the TEACCH centers are free to citizens of North Carolina.
- Resources for Autism: Resources for Autism is a registered charity. Providing practical services for children and adults with an autistic spectrum condition and for those who love and care for them in the UK. http://resourcesforautism.org.uk/
- Teaching Tips for Children and Adults with Autism https://www.iidc.indiana.edu/?pageId=601 Teaching tips from Temple Grandin for autism children and adults.
- Autism Resources for Families http://www.nationalautismcenter.org/resources/for-families/ Contains resources and guides for parents of children with autism.
- Autism Society http://www.autism-society.org/ – The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism.
- Sesame Street Autism Resources http://autism.sesamestreet.org/ Contains all sorts of resources, including videos to help children understand autism better, daily routine cards, and more.
- Autism Speaks Resource Guide http://www.autismspeaks.org/family-services/resource-guide
- Career Assistance for People with Autism http://www.hloom.com/career-assistance-for-people-with-autism/
- National Center for Autism Resources & Education https://www.disability.gov/resource/national-center-for-autism-resources-education-ncare/
- AutismNOW Transition Planning http://autismnow.org/in-the-classroom/transition-planning-for-students/
- Aquatic Therapy for Children with Autism http://www.saveonpoolsupplies.com/landing/aquatic-therapy-for-children-with-autism.aspx
- Autism http://healthfinder.gov/FindServices/SearchContext.aspx?topic=81
- Tips for Reducing Noise When Shopping http://www.retailmenot.com/blog/sensory-overload-while-shopping.html
- CDC Autism Resources http://www.cdc.gov/ncbddd/autism/links.html
- Autism Resources for Military Families http://www.operationautismonline.org/ Operation Autism directly supports U.S. military families touched by autism and autism spectrum disorders. It serves as an introduction to autism, a guide for the life journey with autism, and a ready reference for available resources, services, and support.
- Organization for Autism Research Guide for Military Families http://www.researchautism.org/resources/reading/index.asp#military
- Estate Planning for Parents of Kids with Autism https://www.justgreatlawyers.com/estate-planning-for-parents-of-children-with-autism Planning for the future when you have a child with autism can be difficult, but if you take a forthright approach, you will pave the way toward a successful life for your child with autism, even if you are no longer around to take care of them.
- Scholarships: https://www.affordablecollegesonline.org/college-resource-center/students-with-autism/
- The International Dyslexia Association (IDA) http://www.interdys.org/ – A non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them.
- The Childhood Apraxia of Speech Association http://www.apraxia-kids.org/ – The mission: To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech
- Speech Disorder http://www.speechdisorder.co.uk/ – A United Kingdom-based organization providing resources and information about speech and language disorders
- The Stuttering Foundation http://www.stutteringhelp.org/ – The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.
- CHADD (Children and Adults with ADHD) www.chadd.org– The nation’s leading non-profit organization serving individuals with AD/HD and their families
- National Resource Center on AD/HD www.help4adhd.org – The nation’s clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (ADHD)
- March of Dimes http://www.marchofdimes.com – Mission: to improve the health of babies by preventing birth defects, premature birth, and infant mortality. They carry out this mission through research, community services, education and advocacy to save babies’ lives.
- PreemieCare http://www.preemiecare.org/ – A non-profit organization dedicated to supporting families of infants born preterm through education, support, and resources.
- Prematurity http://www.prematurity.org/ – Resource websites that lead you to the world of preemie parenting.
- Spenser’s Hope http://spensershope.org/ – “Dedicated to Helping Families Experiencing Preterm Labor and Premature Birth”
- Hospital Traveler Services http://www.hospitaltraveler.com/ – Since 1994, the staff of Hospital Traveler has been responding to the increasing need of the medical patient, their family, patient caregiver and medical staff traveler by offering low medical rates at affordable hotels near hospitals. In addition to our patient traveler and medical lodging service, Hospital Traveler is the first agency to establish a Medicaid travel program intended to assist eligible Medicaid and private Insurance recipients use their benefits as payment for their medical travel reducing the out-of-pocket medical expense.
- Care Coordination for Children (CC4C) http://www.ncdhhs.gov/dma/medicaid/csc.htm Call: 1-800-662-7030. CC4C is a free and voluntary program that helps families like yours find and use community services. CC4C care managers can help with finding medical care, transportation, childcare and /or financial aid. They can also provide you with information about a wide variety of family oriented resources. Children birth to age three who are at risk for developmental delay or disability, long-term illness and/or social, emotional disorders and children ages birth to five who have been diagnosed with developmental delay or disability, long-term illness and/or social, emotional disorder may be eligible for the program.
- eSpecial Needs http://www.especialneeds.com/home.php – Provides adaptive equipment, rehab equipment and therapy solutions for children and adults with special needs.
- Family Voices http://www.familyvoices.org – A national grassroots network of families and friends, advocates for health care services that are family centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
- The Food Allergy & Anaphylaxis Network for kids www.fankids.org – If your child has a food allergy or is curious about a friend who can’t eat peanut butter or drink cow’s milk, check out this site. It helps school-aged children learn more about their own or their friends’ allergies, and includes fun activities, contests, quizzes and more.
Other Specific Info
- Tourette Syndrome Association http://www.tsa-usa.org/
- 4MyChild http://www.cerebralpalsy.org/ – Mission: to provide you with the most comprehensive resource and compassionate voice for all things related to caring for a child with Cerebral Palsy, Erb’s Palsy, and other neurological injuries.
- National Down Syndrome Society http://www.ndss.org/ – The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
- Cerebral Palsy Guidance http://CerebralPalsyGuidance.com
Contact Elected Officials
- Common Cause: http://act.commoncause.org/site/PageServer?pagename=sunlight_advocacy_list_page – Find out who your elected officials are and how to contact them here.