So, a couple weeks ago I got a call from Social Services that the state of North Carolina has determined that Squeaker is disabled. This means that, theoretically, he would be eligible for Medicaid. I’m not looking for a check. We don’t need money. We need access to services that our insurance won’t cover and we can’t afford to pay out of pocket for. This is awesome, right? Well, it would be. Except that we need to be approved for CAP services before they can approve the application officially.
We were not eligible for CAP-C because he’s not severely physically handicapped. We’re likely eligible for CAP MR/DD except that there’s a waiting list and no funding. I’ve tried calling and asking about it several times in the past week and a half, and can’t ever get the lady on the phone. I leave messages with their stupid receptionist and I’ve only gotten a call back once, and my question wasn’t answered. I got the promise of another phone call after she checked with her supervisors. She never called back. And when I called back, I got the rudest person on the phone, telling me that she’s sure the lady would call me back when she had time.
Well. Speaking of time, the deadline on the application is October 23rd. If I don’t have CAP services approved and a plan in place by then, it will be denied and I will have to apply all over again. This means that it’s pointless to even try to apply again until after he comes up on the waiting list, which has an indeterminable wait. Unless I can get him in by some miracle before then. And then, maybe, we’ll get all the paperwork done on that side of things before the 23rd. Or I wait until he comes up on the list. And who knows when that will be.
In the meantime, I’m still waiting on Easter Seals to get their crap together. The ARC did nothing for us but have us fill out paperwork for no reason and waste our time. There are no after school care programs for special needs kids in our area. So while I’m waiting for someone to provide assistance with him, I’m having a trusted and responsible student pick up Squeaker after school every day but Tuesday and a friend pick him up on Tuesday. I do not like having to ask people for help because it makes me feel like an inconvenience. And then situations like next week come up, where I have a teacher workday on Tuesday and no child care. And Wednesday – Friday are not taken care of as of right now because my trusted student will be in New York. If I had Personal Assistance and Respite care for him like I’m supposed to, none of this would be an issue.
Well, Easter Seals is stuck in the same place we were stuck in before. They have no providers that can work with us. Apparently, no one wants to work with special needs kids in this area? I don’t know. Or maybe they don’t get paid enough and it’s not worth it. I’m not sure what the problem is, but it kind of pisses me off (pardon my French), when I hear about people whose kids are doing much better than mine who already have these things and applied long after we did in the first place. I’m frustrated, disgruntled, and jaded by the entire process at this point.
The system is broken, people. It’s broken. Services that are meant to help those who need it don’t actually make it to the people who need them. I’m trying the squeaky wheel approach. I guess there’s no oil to give. And I’m tired. Tired of calling. Tired of wasting time with applications. Tired of fighting. I wish I could stop, but I can’t. So, I have no choice but to keep going, despite the lack of returns on my invested time.